As it happens, there will be no memorial for some time – so I won't go home this weekend, or I think anywhere over the holidays. Which means, as even Patrick has gone home to Wales for the next three weeks, plenty of time to myself – and/or too much time to myself, however you prefer to view it.
Hubris
The arrogance of assuming, after twenty-five years of dealing with people with AIDS, that this would be easy to deal with: that arrogance has taken a blow – because of course the relative importance of a person changes everything. The sheer sense that the universe has broken in half, or cracked at some deep level: that I can't imagine much caring about doing things if Sandy won't get to read them – that a main reason for functioning, for having successes, has vanished.
On the other hand the bizarre quality of distance, isolation, unreality: since I wasn't there when Sandy was ill, or when she died; as I haven't seen her very often for many years; as I'm thousands of miles from everyone who is dealing with this, connecting with and consoling each other – there is a disturbing elusiveness about the whole situation: as though it is entirely made of ideas, of concepts, of images and words – and the whole starts to feel like a novel that one will close and forget.
My sister hadn't "wanted us to remember her in the hospital"; unfortunately I disagree with that kind of thinking – it makes everything so, well, virtual....
Aging & AIDS
Of course, after fifty, one gets accustomed to losing friends and family with increasing frequency. Which points up what was so bizarre about AIDS – that we experienced the same thing, even more drastically, from the age of thirty (or for some from the age of twenty). There are however differences: AIDS was always more predictably a shared experience, with familiar problems and mutual advice about how to handle them; where most of my straight relatives and friends plan on being ill or dying with only a few immediately family members around, and everyone else 'outside the circle' (as all the family has been except Sandy's husband and daughter).
Which means some isolation from their friends – and no, or very little, discussing things or telling anyone much about them; which also means everything is always an unprepared shock, and also that everything becomes somewhat virtual/unreal.
I suppose this is especially frustrating for me – since I always want to talk about everything....
Mom
The great, background difficulty: how will we take care of Mom? Should I try to move there to help care for her? (Improbable, as finding an academic job in the area would take some time – a year or three at least; and besides my mother, even in her more forgetful and fragmented condition, is not very comfortable being cared for in more intimate problems by anyone male, even her youngest son. Of course the nursing home staff, who are really pretty good although with lapses into ineptitude, will handle most of the day-to-day problems; but my younger sister will have the brunt of visits with the occasional need to handle incontinence, etc.)
Incidentally – I shouldn't call her "my younger sister": she is – or was – really the younger of my older sisters, if you can follow that. Sandy was eldest, then my brother, then my other sister, then me – and that matters because birth order really does function very strongly among the four of us, determining much of our personalities, habits and mutual relationships. Or – will we all shift a bit, in the absence of Sandy, the linchpin of the whole system?...
Anyway: should we assume that Mom is dealt with as much as she can be, by the nursing home staff? Because Sandy spent so much time checking in on her, and watching every detail of what the staff did and didn't do – in fact we apparently became known as somewhat troublesome clients, though it was all clearly justified (it's not a bad nursing home – lots of good intentions – but there's also a startling amount of ineptitude). And now my younger sister (see above for explanation) has been coming down from New York every weekend, almost the length of the Northeastern corridor – she obviously expects to keep doing that; but think of the expense, the stress, possible health issues –
well: not an unusual family problem, I guess. But I wish there were some useful contribution I could make to a solution.
Funeral Music
Monday and Tuesday, before I understood that the memorial wouldn't be for some weeks – now lengthened to months (they've decided to do a Spring memorial in March/April, putting her ashes with my father's in Arlington Cemetary – quite an honor really; I hadn't realized that the families of military men were eligible to be there), I'd been told that Sandy wanted me to choose music for the memorial.
(She thought of everything – or more accurately of everyone: carefully planning for people to have tasks so that they felt involved, which would of course help us get past being on the outside in relation to her illness or death. And, she made a point of taking care of a variety of people – yesterday her husband had the task of taking back her chemo medicines to the oncology clinic, together with holiday chocolates for the nurses. Quite impressive... I doubt I'd think of any of that.)
So, I'd been thinking about finding music: and naturally had the urge to use something really sad and powerful – Arvo Pärt's Cantus (too ruthlessly sad), Gorecki's Symphony no. 3 (unless that's too much of a cliché? – but you don't hear it as often as you did five years ago), Barber's Adagio (too familiar, and too often distorted by remixes, to hear it in the right spirit), or tracks from Cliff Martinez' score for Solaris (too tonally weird) – but I will have to tone it down to something more peaceful and acceptable to a large suburban audience.
Sandy and my remaining sister Lauren both love baroque music – perhaps some solemn Purcell or Handel would work well... the Chaconne at the end of The Fairy Queen, or a slow movement from a Boyce symphony, or that best of Handel concerti grossi where everything suddenly turns delicate, transparent, and faintly sad?...
I'd pulled some CDs out to think about them; now that I have several months I'll just make a list, I suppose. But will hopefully not delay decisions until the last moment.
And, speaking of decisions – my friend Susan H. from Los Angeles helped me buy the classy black suit for my father's funeral in 2000, a better and more appropriate choice than I ever could have done on my own. I hope I can wear that of course, but – may not be that shape any more – aargh: the difficulty of wanting to be appropriate, but not ever wearing such clothes these days....
Solaris
Of all possible movies – the remake of Solaris was on television several hours after Sandy's death. As I've said before, despite any criticisms anyone else cares to make in comparison to the Tarkovsky or Lem originals, I love this movie very much – and it is, for me, a nearly perfect poem about love, loss, death and eternity. Seeing the detailed turns and changes of the film's last hour, I think, again: when he imagines himself returning to Earth – and then we jump back, and see him decide to stay on the ship – that I would certainly, absolutely, make that same choice.
"Am I alive, or dead?"
"We don't have to think like that anymore."
The master
Sandy, especially after her apparently unpleasant year taking a master's degree in city planning at Harvard (as Susan M. always says: "Harvard ruins people" – testimony to the viciously unfair politics that reputedly mar the most famous of American universities), didn't talk a lot – in fact it seems as though the elder two (Sandy and my brother) got quieter over the years as we two younger ones became more voluble.
However, what she did say was usually right on target. It was also often clear, simple, and as scalpel-exact as advice from a Zen master – and more so than, for instance, my father's advice, which was similiarly kind and sensible, but not as startlingly exact. I have the sense, looking back – I was mostly unaware of this at the time – that some particular sentences out of her mouth were the main reason I got anything at all right.
For instance, after botching Purcell's long-phrased 'Hallelujah' at my younger sister's wedding, when I was thinking of university, performing, composing, musicology, sciences – she said, "I've always thought of you as more of a book person." Clean, precise – clarifying that no, I shouldn't be a performer, but without any unpleasant criticisms or side comments....
Holidays
The dullness of feeling: combined with the relief that I won't bother to figure out pretty much anything for this holiday – no tree (which means I don't have to replant the one from last year which is half dry), no travel (which means no answer to the apartment rental in Palermo – probably too expensive anyway), and no concern about presents (the family had already decided not to bother this year).
Dangerous, of course, at least under some circumstances: although the depression therapy of the past three months has actually made me less anxious about the holidays (the actual fear of being left in too meaningless/depressing/lonely a situation on Christmas morning is much smaller), it is still not ideal – not the best way to get older: trying to decide where to go alone on Christmas – it's not healthy, I suppose.
And, in a way, I'm disappointed that the memorial is so far away: it means that the reality of losing Sandy turns into a lengthy social process, a cloud of minor needs and duties and experiences, and that any memory of her gets lost in the shuffle....
Strange holidays.